Yesterday, I went to the Mayo Clinic again for my IVIG appointment and my doctors visit. All went okay, but of course it really wasn't all that exciting. :O) My doctor that I had been seeing there - wasn't there yesterday - so I ended up getting visited by another doctor and some medical students. Really, it made me feel like more of a spectacle than anything else, but the appointment went ok. I had to get my shot of progesterone and spoke to the nurse for some time, they weren't too happy that I have lost weight again (10 lbs. so far) but, really - I am not complaining. The doctor stated during my appointment that the IVIG things have never been proven to actually work for my condition, they just like to THINK that it helps. (UMMMMM - OK ... then (I thought) Why - did I come here again ??? )So, given it was late already, at that time ... I elected not to get the IVIG yesterday and just went home. The doctor that I saw didn't seem too with it anyway - he was from england and I have no problem with that other than that he didn't seem to know what was going on at ALL with me. I really didn't like to be made to feel like " oooh, look at the girl with alloimmunothrombocytopenia" .... like I was someone's project or something. Needless to say I felt pretty uncomfortable upon my departure. Honestly though, I hate being the focus of attention - good or bad, I just don't like it.
Anyway - they want for me to return next Friday (the 19th) to do a "PUBS" procedure. This is like an amniocentesis - however they do not take amniotic fluid - in this case they go into the placenta and check the baby's blood platelette levels. The docors and nurses told me that they have seen cases that an emergency c-section is required after some. AND ? I HAVE A PROBLEM WITH THAT !!! Um, first off, I feel that it will be too soon, (I will be at 34 weeks at that time) but the doctor said even if delivery is an issue the baby should be fine. OK.... I still have a problem with this !!!! I told them from square ONE that I wanted to do everything they could before a c-section was even thought of, I hated my one past experience and DO NOT wish to go through it again. So, seriously do these people even listen to me ??? Why do it then ??? Why if it isn't a major thing right NOW, does this HAVE to be done - especially right then ??? ??? I am REALLY considering re-scheduling this "thing" until a later date, I really just am NOT comfortable with it. What do any of you think ???? I need some input here. I don't think I am complaining - am I ??? I could see a c-section upon an actual emergency and all .... Am I being selfish or stupid ???? Or are my feelings of wanting it to be on "natural time" actually confounded ??? So, see, right now I am just not at all happy with this situation.
Besides that, today I just piddled around the house - I couldn't sleep worth crud last night and finally went to bed at about 5 am. The stupid fish tank I cleaned the other day went ballistic again and I had to re-do everything I just did. I am totally nesting right now and my major cleaning will begin soon here - but some things I seem to be stuck rather neurotically on - duh - like the fish tank. LOL - though, I found an article online that made me feel alot better about it though - it seems alot of women do this "neurotic nesting" thing, so I feel better that I am not the only one. I just hope to get it all done before you know who decides to come !!! :O) (or whatever)
Well, I think that is all I have to say for tonight. My son Cameron is running circles around the sofa, I need to get him (hopefully) in the shower , I have to go clean up the kitchen from dinner yet and do some laundry - I left some stuff out upstairs and I have to clean that up as well.... I have to get up early in the morning tommorrow to take our van for the day because my hubby has to go into work early as he has to go to Ft. Snelling. (MN) He'll only be gone that day, but wanted to leave the van with me "in case"...... (Man, it really stinks having one car. I wish we could afford to get our old Saturn fixed, but - who knows - maybe in time.) Well, maybe - after all that stuff is done tonight, I will be able to fall asleep and get some rest . So ... for tonight, have a good night all, I will be back tommorrow. :O)
TAMMIE
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